MPN Journal

A Journal of my life with Polycythemia Vera, a rare blood cancer.

Polycythemia Vera is a rare blood cancer within the family of MPNs (myeloproliferative neoplasms).Follow along with me and read more about our family and our life with and MPN

My Journal

Read about my family and I in our Journals.

MPN News

News concerning MPNs, Polycythemia Vera, Essential Thrombocythemia and Myelofibrosis.

Gallery of MPN Life

Galleries of Life with MPN.

Latest Entries

MPN Journal

COVID-19 and MPN

First this is all just completely insane. The US has surpassed China and Italy in coronavirus cases by all COVID-19…

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2 years of cancer medication

If you have been following along I have been on Jakafi for a little over two years. If you notice…

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COVID-19 and MPN

So the entire world is going absolutely nuts with COVID-19, corona virus, Wuhan flu or what ever you want to…

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changes ahead

As usual I went to my bi monthly doctor visit this last month and we discover many more changes. We…

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Face Rash

One thing I forgot to mention even before A Year and a Half in Review is that since I have…

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Time Flies

I have been missing for almost a year and a half. Life has found a way of being very busy…

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My MPN Stats

Future tracking of CBC Tests coming soon

Years with PV

How long I have lived with PV


Medication Cost

Approximate retail value of the medication I have taken to keep symptoms at bay.

$ +
Approximate Retail of medication To Date

Times stuck with needle

The morbid reality of living with cancer is constantly getting stuck by needles. Its a fact of life.

Needle Pricks

More Content Coming Soon

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